Uncategorized

Follow Happily Ticked Off on Facebook!

ts image

In an effort to get people connected, you can now find posts from this site as well as other inspirational T.S. related stuff, on Facebook.

Follow me here! Feel free to write me, also, at HappilyTickedOff@Gmail.com

Talk at you soon – and can’t wait to connect.

Tics, Tourettes

Sounding Off About Vocals – A Real Term for This Irritation!

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Those of you with tics who have written to me often say that your noises bug you.

Those of you without T.S. but who live with it say the sounds can drive you batty.

I have nothing but sympathy for people with T.S. when their symptoms drive them nuts. Honestly, if my friend’s kid is ticking, doesn’t bug me in the slightest! But when it’s my kid, I really struggle.

Perhaps this is like people who have sympathy for the anxiety/neurotic/blabbermouth type. You might find me those other emotionally-inclined people funny, but if you lived with them, you might want to kick them to the closest pharmacy and insist they down a bottle of Xanax with a Zoloft chaser.

For those of you who have issues with vocals – despite feeling guilty for having such issues – I am pleased to announce you might actually have a mental disorder!

This just in from someone in my Twitch and Bitch private group: I had to share with my loyal mamas here!

You’re welcome.

Misophonia:

Misophonia, literally “hatred of sound”, is a neurological disorder in which negative experiences (anger, flight, hatred, and disgust) are triggered by specific sounds.  The sounds can be loud or soft. The term was coined by American neuroscientists Pawel Jastreboff and Margaret Jastreboff and is often used interchangeably with the term selective sound sensitivity.  Misophonia has not been classified as a discrete disorder in DSM-5 or ICD-10, but in 2013 three psychiatrists at the Academic Medical Center in Amsterdam formulated diagnostic criteria for it based on the largest cohort of misophonia patients so far, and suggested that it be classified as a separate psychiatric disorder.

The disorder comprises a unique set of symptoms, most likely attributable to neurological causes unrelated to hearing-system dysfunction. It can be described as an immediate and extremely negative emotional response accompanied by an automatic physiological flight response to identifiable auditory, visual, and olfactory stimuli. The disorder disrupts daily living and can have a significant impact on social interactions. A 2013 review of the most current neurological studies and fMRI studies of the brain as it relates to the disorder postulates that abnormal or dysfunctional assessment of neural signals occurs in the anterior cingulate cortex and insular cortex. These cortices are also implicated in Tourette Syndrome, and are the hub for processing anger, pain, and sensory information. Other researchers concur that the dysfunction is in central nervous system structures.  It has been speculated that the anatomical location may be more central than that involved in hyperacusis.

Symptoms:

People who have misophonia are most commonly angered, and even enraged, by common ambient sounds, such as other people clipping their nails, brushing teeth, eating crushed ice, eating, slurping, drinking, breathing, sniffing, talking, sneezing, yawning, walking, chewing gum, laughing, snoring, typing on a keyboard, whistling or coughing; saying certain consonants; or repetitive sounds.  Some are also affected by visual stimuli, such as repetitive foot or body movements, fidgeting, or movement they observe out of the corners of their eyes; this has been termed misokinesia, meaning hatred of movement. Intense anxiety and avoidant behavior may develop, which can lead to decreased socialization. Some people feel the compulsion to mimic what they hear or see. Mimicry is an automatic, non-conscious, and social phenomenon. It has a palliative aspect, making the sufferer feel better. The act of mimicry can elicit compassion and empathy, which ameliorates and lessens hostility, competition, and opposition. There is also a biological basis for how mimicry reduces the suffering from a trigger.

Prevalence and co-morbidity:

The prevalence of misophonia is unknown, but groups of people identifying with the condition suggest it is more common than previously recognized. Among patients with tinnitus, which is prevalent in 4–5% of the general population, some surveys report prevalence as high as 60%,[11] while prevalence in a 2010 study was measured at 10%.

The Dutch study published in 2013 of a sample of 42 patients with misophonia found a low incidence of psychiatric disorders, with the exception of Obsessive-Compulsive Personality Disorder (52.4%).  It has been suggested that there is a connection between misophonia and synesthesia, a neurological condition in which stimulation of one sensory or cognitive pathway leads to automatic, involuntary experiences in a second sensory or cognitive pathway.  The basic problem may be a pathological distortion of connections between various limbic structures and the auditory cortex, causing sound-emotion synesthesia. There are people with both misophonia and synesthesia, and many people with synesthesia have more than one form of synesthesia (there are over 60 reported types).  Misophonia may very well be another type of synesthesia.

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They are now doing studies to see if there is a relationship between ADD and Selective Sound Sensitivity Syndrome (4S).  Individuals with ADD are typically not bothered by loudness of noise – rather, the softer, repetitive, common sounds are the ones that irritate, distract, anger and sometimes send them into fight or flight mode.

Photo taken from here!
Check out more posts about Tourettes at the New Jersey Center for Tourette Syndrome where this blog is syndicated.
acupuncture, Tourettes

Acupuncture to the Rescue: Tics Reduced!

Good news! This post is not as long as Sunday’s “War And Peace” expo Stink is seeing relief already from one treatment of acupuncture yesterday. I am so relieved. He came home calmer, with a 75% reduction in vocals. He still sported major eye rolling and head shakes/head butts, but his acupuncturist says it’ll take a week or so to really get suckers subdued.

I’m lucky as my son’s healer (and the source of my new found hope) is the incredibly talented Martina Eberhard who just happens to live across the street from me. She practices out of a darling 3 bedroom, wood floored, 1950’s cottage home. Her treatment room smells like heaven. It’s about about as clean and professional as any first-rate office park salon. In fact, it’s easier to relax in as the whole house is flooded with a personal warmth. Parking structure and cement? No thanks. I’ll take curbside service and a brick patio.

A few years back, she had come up with a treatment plan and supplements that she was convinced would really give Stink 90% relief. (Video and post here.)We ended up not seeing her plan to fruition because, despite only 20% of her treatment being executed, we saw such drastic improvement. Stink was tired of doing it, also, so we took a break.

Um, the above statement? It’s kind of akin to a bipolar person going off their meds because they “feel so much better!” Suddenly there are freak outs, manic screaming, and all around “What just happened?” despair. Pretty stupid, but let’s not berate ourselves with the past, shall we? Moving on.

As fate would have it, just when I started to lose my brain with tics, Martina mentioned that she saw this article on a teen Miss America who had severe T.S. and was “cured” through acupuncture. The formulas and treatment used on her were the same as Martina recommended for Stink two years ago, inspiring her even more to work on Stink again!

So, with my heart in my hands, tears in my eyes, I said “Yes.”

Full Disclosure: Martina’s rates are more than reasonable for her high level of skills. Check out the above video – she is sticking needles into my kids head and shins! She knows what she’s doing. That said, because of my professional writing background, we are trading service for service. I only mention this because if trades were not an option, I’d pay anyway. She’s that much of a healer. Eberhard did not pay for this review.

Big Take Away: Where there’s a will there’s a way, and sometimes we must get creative to make things happen. We all have gifts – why not use them to benefit one another?

Stink will begin acupuncture three days a week, then taper to two, then one.

Last night we had an impromptu bbq in the back yard. My sweet hubby cooked for us all, including Miss L and Martina. Connection and friendship out trump tics every time.

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I’ll keep you posted! Meanwhile, is something working for you?

Check out more posts about Tourettes at the New Jersey Center for Tourette Syndrome where this blog is syndicated.

Uncategorized

Your Twitch and Bitch (Slap)

my kid

I’ve been trolling a lot from my private group lately. There is just so much gold to be mined, I can’t help but share some of the nuggets. I promised my ladies, even though I keep their names anonymous, that I won’t be ‘using’ them forever for their stories.

But sometimes, I can’t help myself. When we share with others, it makes us all feel so much less alone and real. Besides, since my group is called “Twitch and Bitch,” I occasionally have to take advantage of my bitches. (Note to Margaret: I’m sorry. That really was kind of crass. Please forgive me. It’s bad enough that I went through 3 takes of a video I’m making because I accidentally used my kids’ real names. Your security motions are slaying me!)

Now, back to our original programming.

Today in my group a mom – who I’ve known over 5 years – was freaking out over upping her son’s medication. She is nervous about raising the dosage, even though she thinks he needs it, because she’s worried about what will happen if it doesn’t work. She’s afraid she might not be able to handle the disappointment.

I TOTALLY understand this. For you new moms out there, this is so very very very valid. It’s scary. You don’t want to feel you’ve exhausted everything and have no hope.

Even for you old-time TS moms, this is a valid feeling. No one should ever tell you what is okay and what is not okay to feel. But how you act on your feelings? That’s a whole other matter. And again, no one has to take my advice, but I have some anyway. For me, this means being harder on the old timers than the newbies in my group. They are tougher, and if they are not, I make them tougher by giving them a little Andrea boot camp. I call it the Twitch and Bitch Slap.

Maybe you could benefit from this, too. If I hurt your feelings, I’m sorry. Please know it’s for your own good. And if you disagree, feel free to say so! (But it doesn’t change my mind.)

My Note to Old Timer Sad Mom

Here’s you Twitch and Bitch-slap:
 
1. Get a therapist
2. If you don’t like the therapist, find a new one
3. If you don’t like that one, find a new one after that
4. When you find a great therapist, go every week for a year
5. If you’re not feeling better after that, try something new. Consider medication. Consider church. Consider meditation.  Consider a job. Consider exercise. Consider ANYTHING different.
 
I PROMISE YOU. You can’t NOT do what I prescribed and not feel better. It’s not possible. If you feel that it IS indeed impossible, it’s not, it’s just what YOU think about it and honestly, that is of no consequence. That “it’s not going to get better talk” is called depression. There is a cure for depression. Don’t know what it is? Re- read #1 – 5.
 
Take two drinks and get back to me in the morning.
 
Dr. Andrea
* Note about drinking: I’ve done it when the stress has hit. A lot of us have – it takes the edge off. But this is not a mechanism that should be a permanent fix. It’s a slippery slope between “mercy” and “alcohol abuse” and one that I find I have to watch closely. I hope you do, too. (Speaking of, it’s Saturday night and I’m drinking, shhhh, coffee. I know. I’m crazy. If Stink is going to head shake all day – which he’s been doing all week for whatever reason – I figure I can shake from too much caffeine in solidarity. I’m awesome that way.)
Uncategorized

One of These Kids Is Not Like The Other

“One of these things is not like the other…” That used to be my kids’ favorite Sesame Street song. They’d squeal with joy when one row of boxes containing 3 apples and oranges rolled by, while another box contained 3 apples and a banana. So similar, yet so different!

Perhaps you, too, can play this game with my children.

Pip’s Suitcase

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Stink’s Suitcase

2

Pip’s version of arcade game playing

3

Stink’s version

4

Pip’s version of hat wearing

5

Stink’s version

6

While I’m stoked to say that no one laughs at Stink for a few tics, our family finds him pretty hilarious. He really brightens our lives.

Pip finds him pretty darn funny also. She’ll even tie his shoes for him. 7

After all, shirtless arcade play is exhausting. Plus he’s got those 100 pens to organize in his suitcase.

The takeaway: If your kid is eccentric like mine, like Stink’s treasured Scooby Doo suitcase, you better roll with it. They only get more eccentric with time. (And thank God. It’s so much more fun.)

Uncategorized

Staying TRU to You!

tru

Meet Tru, Kaiser Permanente Therapy dog. She makes sick people feel well, even if for a few moments only. Do you think she cares that she has a crooked shamrock on her head or that her spots don’t match? I think not! Tru says to the world that you can have joy in less than peaceful circumstances. She is Tru (pun intended) to herself.

This is a theme for me these days.  Our house, for the past six months, has been in a constant state of change/upheaval/mess.

First came the renter in October, so the office went buh bye.

So did our dining room which became the new office.

So did the TV room which became the new dining room.

The living room stayed the same! Woo hoo! Good news!

The bad news… we had to get rid of 600 square feet worth of junk, not to mention that the kids had to choose what they valued most from their junk pile of flammable crap treasures in the TV room and consolidate it into their shared bedroom. Which has not shelves.

Which meant hallway linen closets had to be rearranged. (Do we really need 923 towels from 1974? I think not.)

It also meant that the kids had to throw out some of their crap treasures when it all didn’t fit in the hallway closet.

There were, to say the least, lots of tears, fits, anxiety and tantrums. I eventually wiped my eyes the kids’ eyes though and helped them see this as a learning experience. Tourettes truly taught me this. Ask any of my friends, and they will tell you that when Stink was first diagnosed, I was a basket case. Every tic was cause for alarm bells. No doctor could see me fast enough. No amount of “It’ll be okay” shoulder rubbing would suffice. I wanted perfection (no tics) and I wanted it immediately.

Of course, this didn’t work. I had to come up with a better game plan. And while it wasn’t easy, I started viewing his diagnosis as a marathon, not a sprint. I started having joy in the process. I mean, if you’re going to embark on killing your family with gluten free bread, why not subscribe to Pandora and teach your kids the art of show tunes while you bake? If you’re going to sit in traffic for 2 hours on the way to UCLA, why not get Harry Potter on tape or count sky scrapers and explain what it means to be an architect or bring your mom along who can point out the area of UCLA she used to work in back in the days of the covered wagon? (Sorry, Mom. I had to.)

I say all this because, finally… dare I type this… my house is sliding into place again. And with that place – and space – I am finding peace. But it wasn’t instantaneous. It took patience and time and work and, yeah, a few tears. But no one could do it but me. I had to set the tone – for my kids, my husband, my friends (who pitched in) and for, most important of all, ME.

It seems that as women we are bombarded with what it means to run a tight home and have successful kids. But what is the point of perfectly waxed floors and an organizational system to rival Martha Stewart – along with a tic free child – if we are miserable in the process? Why not submit sometimes to the chaos and give yourself the grace that you, your child, your home – YOUR LIFE – is a work in progress? And then, rather than berating yourself for your less that stellar outcome or getting into credit card debt for perfection that doesn’t exist, you can make slow and steady progress, small and steady goals, and look back over your progress and think, “Damn, I’m really growing as a person! Nice job, me!”

Just a few thoughts I had this Monday afternoon.

What about you? Whatcha thinking? I want to know!

Tourettes

Finding the Right School

kids

When Stink was first diagnosed with Tourettes, I was still holding onto hope that he would attend the Catholic school of my youth. He would play sports and go through the Sacraments and be just crafty enough to be adorable in his skinned knee navy shorts but obedient enough to get straight A’s on his report card be head altar server. It was an awesome dream and so much fun to fantasize about!

Then all the kids from his preschool got their acceptance letters into kindergarten. Stink did not.

Given I had no indication whatsoever from his preschool teachers that he would not do well at the private gradeschool (he always had glowing reports on his character, behavior and cognitive/motor abilities), I made an appointment with the grade school principal.

She was five years younger than me, but acted like a stern sixty year old. As I sat there, looking at her somber face in front of an oil painting of the Good Lord, she informed me that Stink seemed very immature at the intake interview.

“He’s FIVE!” I responded, flabergasted.

“Yes, but he didn’t exactly hold his pencil correctly, and with thirty kids in the classroom and one teacher, we don’t have a lot of room for extra attention.”

“Why in the world, then, with that many children, would I want to spend 10k/year on your school?” I asked, incredulous.

“For the Christian environment,” was her clipped response.

“Oh, yeah, I’m really feeling the love here!” was my retort.

So off I went, enrolling him instead in a local charter school. We’re all different religions and sexualities and neuro make-ups and all kids are honored and get this: It’s free and the teacher student ratio is 22 to 1. Jesus would be proud!

My advice to you, today, is to be sure that the school your son or daughter is in does not reflect what you, as their parent, want. Your child is not supposed to live your dreams. They are supposed to live theirs. And that means being supported in a place that best fits their personality, disposition and academic requirements.

I love my charter school! I have the best communities of moms and dads I could ever ask for. (Literally, there are 15 parents at any given time I can call and say “Please pick up my child… I’m running late!” and boom – DONE. Community is everything. And not just any community. A community you are comfortable in.

Here’s a response from a reader here, Leanne, who spoke in my last post about the importance of talking to your child’s school about any issues they might have in order to best ensure their educational success.

Letter

Yes, my son is on Intuniv for tics.  2 mg in the morning, and then the generic form (guanfacine) 0.5 mg afternoon (because you can’t cut the Intuniv pills in half but can the guanfacine).  My son seems better than he was December 2011 when we got the diagnosis……I believe because of the Intuniv.  We didn’t put him on it until June 2012 and only did then because he was SHOUTING HIS WORDS and I can’t even tell you what that was like.  Horrible. 

He waxes and wanes.  I was scared to death of him starting middle school.  I truly was (yes public school).  So I went into middle school before it ended for the year last spring and met with the principal and counselor and let them know I had an incoming son with Tourette’s who would be there in fall.  I had printed off information from the TSA website on what it is, and I also printed off an “introduction paper” on my son and paper clipped a picture of him as well so they would recognize him when he came in. 

I had a friend go with me.  I had stuff about him that I thought would be important, like that he loves math, doesn’t like reading much, loves sports and does a lot of them, and of course explained the tics.  I also had the name of his neurologist and prescriber and phone numbers on there.  That way if they had any questions, they could ask them as well.  I actually cried when meeting with them but they put me right at ease and told me they were there for him and wanted him to have the best education opportunities possible.  I then went back with him two days BEFORE middle school started to meet again with the counselor and take another tour of the school and met with all of his teachers and explained about his tics.  Anything you can do to put his mind at ease, your mind at ease.  The counselor told me that if his tics got loud they could make accommodations such as letting him go to counselor office or bathroom to “let them out” if needed.  There are several things schools can and have to do to help, like a 504 plan I think.  There is a lot about school on http://tsa-usa.org/    

He does have loud vocals waxing and waning.  Some teachers have allowed him to chew gum in class discretely (so other kids won’t want some) and that helps his vocals, so do gummy candies but I try not to do much sugar.  He “disguises” it as well with his words in sentences going up and down in volume.  I was petrified of middle school for him.  But I did all I could BEFORE he got there which I think is huge.  Your mind can take you down some dark, scary roads that don’t even turn out to be true.  I think if you met with middle school staff your mind would be put at ease.  This got so long…….there is just so much I could say because I have been there, I do understand, and will continue praying for you.  I will answer any questions any time.

* Photo taken 3 years ago. These kids are still best friends. So much of that has to do with the school. It’s a school that advocates for diversity and togetherness with no bullying policy. I AM SO GRATEFUL!

Check out more posts about Tourettes at the New Jersey Center for Tourette Syndrome where this blog is syndicated.

Uncategorized

Faith, Supplements and Hope: Welcome!

After everything we went through this summer and last Spring with UCLA and their “wonderful” Intuniv program, Stink’s tics are worse than ever. His focus is up, but what is the trade off? The ability to sit still while clicking 50 times/minute plus, oh this is a fun one, at least three shudders/minute? Should we get on yet another medication to help ease this? Maybe some nice narcotic? And then, down the road, shall we go with an anti-depressant to ease some of the social stigma from all the stares and questions about his tics?

NONSENSE.

I am easing away from this stupid drug and all these ridiculous labels about what it means to have T.S.. I always say it, but far greater than a “classification” for symptoms is confidence, and God bless Stink, he has it in spades.

I am not going down the drug route anymore unless absolutely necessary.

And, as fate will have it, UCLA isn’t returning my call anyway. I have tried, for 2 months, to get a hold of Dr. McCracken, via email and phone. He had promised me, after we thought we found a silver bullet in helping Stink’s tics and focus, to tweak the meds if there was a problem. HELLO THERE IS A PROBLEM! But where is Dr. McCracken? Likely busy with yet another study that is funding his research or perhaps a child with more severe issues than Stink.

Which is fine with me. I wish him no ill will. He is very good at what he does.

But I’m good at what I do. It’s called calling B.S. when I see B.S..

I will moderate these tics with diet and some better supplements and, in three months, I will have good news to share with you!

Until then, please love your kids for who they are, not their tics. They are worth it. Life is short. Our kids are growing up fast. Time, like our kids, is ticking. Don’t let fear and a medical community who only knows “pills” tell you how to raise your kid. If the drugs work for you, yeah! But if they don’t, do not give up hope. There is always another way. And that way, my friends, is perseverance and faith and some mama kick butt humor and strength. We’re all in this together.

Next post: Supplements! We started today. I’ll keep you posted.

Uncategorized

Dr. Sims and Dr. Stack – Dentists Who Have Cured TS?

Someone in my private T.S. group asked what I thought about Dr. Sims – a dentist on the East Coast who claims to cure T.S. through a mouth piece similar to a retainer.

I likely know as much about Dr. Sims as she does as I have received most of my info through his Youtube videos and publishings.

While many are skeptic, claiming that T.S. is neurological in basis only, I’m always open to new ideas. In fact, I called a similar doctor a few years back named Dr. Stack. As fate would have it, I did some research for this post today only to find that Dr. Stack trained Dr. Simms. Here is a pretty informative article about the mouthpiece and how it works.

* Note: When I called Dr. Stack’s office to speak with him, the secretary said he takes phone calls about the device by phone appointment only – an appointment that would cost me $200. (Given that I am Ebaying one $10 shirt at a time to save for my own miracle cure Brain Balance, I declined setting that appointment time. But I did give him the benefit of the doubt. His work is getting decent reviews. He’s a busy dude!)

Another blogger wrote about the appliance and tics in more layman’s terms. I’ve taken the liberty of cutting and pasting that article below.

The easiest way to understand how Sims and Stack explain Tourette’s syndrome is to consider the experience of accidentally and unexpectedly hitting a thumb with a hammer, touching a stove, or stumping a toe. Many people will utter a loud “Ouch!” or “Darn” or some other expletive we cannot use on a family oriented website in response to pain.

dr_Stack_and_patient%281%29.jpgSuppose the nerve fibers that conduct pain to the brain somehow got crossed with the nerve fibers involved in seeing a woman with large breasts, or being pulled over to the side of the road by a traffic policeman, or seeing a large yellow object. The brain might generate an impulse to say “Piggie! Piggie! Big tits!” or “F—-ing Pig! F—ing Pig!” or “Tweetie Bird! Tweetie Bird!” the same way it generates an impulse to say “S—!” when someone touches a hot stove. (Andrea’s Note of Interjection: Moms, relax. Your kid is not going to curse in circle time. I promise. Moving on.)

People who have Tourette’s syndrome tend to have “crossed wires” while they are focusing on difficult or interesting tasks. They often consciously try to suppress inappropriate speech and movements, until they just can’t. Sims and Stack tell us how this can happen.

The nerves leading from the muscles to the brain sometimes amplify pain signals to make sure the brain gets the message. “Fast” pain fibers in a large nerve enter the base of the brain from the face. Nerves that transmit information about temperature enter the brain at the same place, and the outgoing cranial nerves VII, IX, and X leave the brain in this region.

These cranial nerves control the front of the face, the sides of the face, and the lower digestive tract. Sims and Stack believe that if these nerves are compressed together, they may engage in cross talk, similar to a short circuit, transferring nerve impulses from one to another, partially bypassing the higher control centers of the brain. The stronger the nerve impulse, the harder it is for the higher levels of the brain—which are the usual targets of drug treatments—to intervene and stop the tic.

Dr. Sims and Dr. Stack treat Tourette’s syndrome by relieving the physical pressure on the nerves entering the base of the brain so there is less cross talk. They have developed a plastic dental appliance they call a neurocranial vertical distractor, which “distracts” the fibers entering the base of the brain from the cross talk of neighboring nerves. Fitting over the lower teeth, it holds the lower jaw in place so there is less pressure on the base of the brain. Wearing this appliance 24 hours a day reduces symptoms of Tourette’s disease in adults, as you can see on You Tube. When the proper spacing of the jaws is determined, these dentists report, all tics cease immediately:

Even more promising, however, is the possibility of using this dental appliance in treating younger children who are just beginning to have symptoms of Tourette’s. The first symptom of Tourette’s usually appears at the age of five, about the same time the skull grows tight over the area where the nerves involved in tics enter and exit the brain. The first tics usually involve the eyes.
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Let me go on to say that, similar to the controversy over Brain Balance – a $6000 program that promises to alleviate tics and other symptoms based on re-wiring the brain through diet and specifically targeted exercises –  there is a lot to be skeptical about when it comes to Dr. Sims and Dr. Stack.
“There’s not enough substantiated evidence that this works!” people say. “So what if some people say it works. These guys could be quacks!”
My response to these doubts is the same I give about Brain Balance, “Western Medical doctors are quick to hand out pills to kids to dull their brains and their tics, and those sometimes don’t work. In fact, no doctor even knows why a kid develops T.S., so why is their pill more valid than an alternative treatment? Oh, because they are buying their beach front property thanks to pay-outs by big time pharmaceuticals? Because folk are more comfortable with traditional methods? That might be, but I don’t think Steve Jobs sat around in high school thinking, “You know, my passion for transmitting electronic information over invisible wires is not something the telephone company understands. I better just give up and sell phone books.”
How can we not investigate everything for our children? No one is forcing a gun to my head to buy. Most days I don’t feel desperate for a cure. I’m looking for something that will give my son the best quality of life ever. If something works – say Brain Balance or this dental device – does it matter if I 100% know why?” (Like… why is this formatting so wonky? Don’t know, don’t care. As long as I get the info out.)
So that’s my question to you all: Would you take a chance on something if you weren’t 100% sure why it worked but it worked? And it was non-invasive?
My husband wouldn’t. We are night and day on this issue. While I admit I want “a cure” as much for me as my son (who really could care less) it seems nuts to my darling mate. I think often about my experience with my chiropractic kinisilogist: Rex had no idea how Dr. Carroll could place some vials on my kid’s chest and tell me what he was allergic to. But by golly, one traumatic and expensive blood test trip to the doctor confirmed the exact same results. No wheat, eggs or gluten, along with a myriad of other less offensive food and environmental stimuli.
Another thing? I can meet someone in two seconds and figure out their basic personality- if they are sad, or if they are hyper. I have had to back waaaaay off of relationships with people thanks to their vortex of dramatic energy. (This is why I blog. All you readers would destroy me in person with your crazy mama energy wanting to fix your baby. And yes, takes one to know one.) Do I have a degree from Psychic U? No. But I do have the gift of emotional intelligence.
Granted, paying someone 6k is a lot and I wouldn’t do it based on emotional intelligence alone. But a combo of “this feels right” combined with enough testimonials from others and a solid trust in the doctor would definitely sway me.
Why does my kid have T.S.? What caused it? Why does this dental appliance, or Brain Balance, seem like a reasonable thing to me? Don’t know. But it does. Until science catches up with the root of T.S., I’m going to have to dig into my mama roots and treat my son the best way I can.
I’d love to hear your thoughts.
I’ll leave you with this video from Dr. Stack
More parenting blogs from lots of folk can be found at the New Jersey Center for TS where this blog is syndicated. Want to share a story you have with them? Ask me and I’ll introduce you to the fabulous editor! Love New Jersey!
Here’s one from Dr. Sims
Tics, Tourettes

Brain Balance, Change, Cancer and More!

WARNING: Loooooong post ahead. I am not journaling these days, but I need to. Lucky for me, I have a blog to fill in the gap! Sadly for you, it’s a mouthful. You were warned.

I don’t know about you guys, but there’s a lot of change in the air around the Frazer household.

Renting a Room We’re in the process of bringing in a renter. She’s a lovely assistant at the kid’s school who doesn’t have a car. She’s thrilled to walk the one mile to campus each day rather than take the bus. We’re thrilled because it will give my husband something we both need so badly: Time. The kids love this lady, so to work off rent, she’ll watch the kids 10 – 20 hours a month, giving Rex and I an opportunity to breathe.

Upon hearing we’ve consolidated our livingroom/TV room into one room, turned the dining room into an office, and turned the office into a bedroom for R, most people are really shocked. We get one of two reactions:

1. You only have 3 bedrooms! Why are you doing this!?

2. I can’t believe Rex – who is so private – thinks this is a good idea!

The answers to those inquiries are quite simple:

1. We have needed to get rid of crud for years. The kids aren’t ready to transition to their own rooms yet, so why not get a little income to fix up the house before they finally separate next year?

It’s taken one month of solid work, but we’ve disposed of about 800 square feet of stuff, leaving us with more room and organization than ever before.

2. Rex is as ready as I am to take some of the pressure off, both financially and emotionally. He can’t work 60 hours a week and then always be the beacon of calm when I’m freaking out over Stink’s tics which, is less and less these days, but some weeks I’m human. Last week? Not good. I could use some adult conversation on the nights my hub works late. Also, I am ready to build out my office to get writing work again, but need a better place to create in. The renter is our answer.

Stink’s Tics

Regarding Stink, the tics are still pretty yukky. I’ve decided to go full bore and save for Brain Balance. This is the one time I will mention here that I am accepting donations for this. After I’ve saved $ for Stink, all additional income, minus a small amount I will keep as compensation for writing this blog, will fund other children and families to go to Brain Balance or get additional support in their area for tics.

Please don’t feel obligated to give me a penny. I’ll keep on writing here forever. I just figured, with so many people with less worthy causes making $ off their blog, I would finally try and create a small stream of income for something I find quite worthwhile.

Note: I am open to comments telling me I’m extremely tacky to do this when I have a husband with a decent paying job. I would not disagree. At the same time, I’ve always been quite honest that Rex and I disagree over therapy for tics. He thinks Stink is fine the way he is – which is awesome. Me? I think there’s more we can do. Rex and I have agreed to disagree that if we are going after Brain Balance, this is my project to fund. He will be more than happy to support us and cheer us on, but he  is concerned with saving for college and things that will definitely be in our future, not the maybe’s of an alternative program.

House Transition

Here are some pictures of our progress with the house. Believe it or not, it has taken hours and hours to get cabinets cleaned out. The kids have cried over getting rid of old dressers and bags of plastic toys they don’t need. But in the long run, they are so relieved to have a nice space to call their room. Life, like tics, are always changing. My job isn’t to make them content with everything and spare them from yuk. My job is to give them inner tools to have peace while chaos is happening.

Here are some pics of stuff in progress

LIVING ROOM

We removed a brown couch that was blocking the window. We took out a huge armoire that was taking up space and put the piano there. We now have paths to walk around! Plus, in getting rid of the old, we had room for the new – like the lovely 100-year-old sewing machine you see in the 2nd picture.

Small Fixes: Paint and patch walls, add new photographs as Pip is no longer a new-born, and another cool seat in the corner for more entertaining.)

Dream Fix

OFFICE

The dining room used to look like this

It now looks like this:

Small Fix: Bring the big armoire that is currently storing Ebay stuff (used to be in living room) to the cabin. Bring in old office desk and use the plastic rolling carts for the time being until you can do this:

Dream Fix:

TV Room

It used to look like this

It was very crowded with the art center, the little table, the couch, the TV, the book shelves, the science center…. don’t make me go on. Now the shelves are going into the renter’s room. The old stained couch is gone. We’re building some shelves under the bar area (an un-used space) for all my dishes. The only thing in the room now is the big table and the TV.

Small fix: Take down 1980’s plastic blinds, put up toille curtains. Put a nice curtain over the corner of the TV area (as we don’t want TV in living room) and get a nice tall couch for one side of the table near window that will double as both TV viewing and eating. Build shelves under the bar and cover with a curtain. (Maybe get a nice sideboard when the shelves are moved into the renters room. Shelves not pictured here.) Paint the walls gray and get a chandelier over the center of the table.

Dream fix

RENTER’S ROOM

Here is our old work space office in transition. If you think moving computers into the kids’ shared bedroom, moving 10000 pieces of Ebay into the new “office” and hauling out 10 bags of trash was fun, you would be more wrong than many of the political rants I see on Facebook these days.

But the kid’s room is moving along! Here it is without a good paint job, and with many baskets still on the floor. Not bad for a shared space.

KIDS ROOM

I’m not sure why the last 2 pics won’t right themselves up, but it’s fine. These days life is getting comfortable with things I’m not normally comfortable with. I just know it’s all going to be okay.

Dream Fix (taken from Babble)

OTHER THINGS OF NOTE

Ebay

Today I need to get 20 items of Ebay up today as I’m selling for other people in an attempt to not work for $7/hour retail while I write my book.

Breast Cancer

I need to make an enchilada for a friend who just had breast cancer surgery.

Leukemia

I need to find time to see my other friend, Karen, who is on her third round of chemo for leukemia.

Look how amazing she looks!

Food Shopping

Apparently kids need to eat, and so do Rex and I.

Book

At some point this week I need to write my book some more. I’ve been at a road block which I’ll talk about in the next post.

Ex Husband

My ex-husband died a few weeks ago leaving a 10 year old boy and 2 living parents. He had a random brain tumor. Uggg. We haven’t been close, but I did see him in Christmas, 2011, for a brief visit. I’m glad we caught up and mended some bridges. This was a pic he posted on Facebook with the quote “Me the ex-Mrs. Ingman, taken 19 years after our wedding.” Um, I wasn’t thrilled by that. But hey, that’s FB for you. May you rest in peace, dear Jim!

FINAL THOUGHTS

I don’t know what to say except bring on the tics, bring on the house upheaval, bring on the illnesses. We can this together.

Love you all.

Thanks for listening.