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I Used To Be Such a Good Blogger…

…But a full-time job with kids home at all summer has put a serious damper on my style. I think I need a degree in project management to keep track of their schedules and my husband’s wacky work schedule. Not to mention my kids need sustenance. Seriously, mamas, kids need attention every day. EVERY DAY. Can you even believe it?

A big shout out to all my friends who have circled the wagon this past month to take my kids to such wonderful places as the beach, downtown Los Angeles for Mexican dresses, art openings, Swedish festivals, bowling, parties, sleepovers and more. I don’t even know if any of you read this blog, but if you do, you know who you are. I am so very grateful.

To answer the last blog’s question of ‘Would you tell a camp counselor if your kid had T.S.?’ I did indeed tell the camp director. She didn’t flinch. She didn’t even twitch – and not because she doesn’t have T.S.. She simply didn’t react because, apparently, I’m not the only mom in the world who has a child with special needs.

I was immediately put at ease, especially with her closing statement. “I am glad you said something,” she offered kindly, “Because if some kid acted poorly toward him, I’d want to know that he could advocate for himself or talk to his counselor.”

“My son not only advocates for his tics, he also advocates for seconds on popsicles, extra pool time and extra room on stage to take his final bow,” I said, giving her a small glimpse into his over-the-top personality.

She smiled, “He’ll have to join in line behind the other boys,” she said. “This is a public park n’ rec. That kind of behavior is par for the course.”

One week later, my son came home in tears.

“Oh, no,” I said, pulling him into my arms. “What’s got you so upset?”

“I don’t know,” he sniffled, sitting on my lap. I almost gasped at how heavy he was, but I decided breathing was overrated. How long would my almost sixth grader want to cuddle with me? I bent my head next to his mop of curl, enjoying the warmth of his bear paws on my knees.  I took a deep breath, was reminded he needed to wear Roll On with more frequency, and snuggled close. “You must know what’s wrong,” I nudged him.

“Well, I guess I do. But I just don’t want to say.”

“Oh, no,” I though. He’d been lightly hiccupping all week, likely due to chlorine overload. I was ready for his tale of woes about the kid at the snack bar who asked him to keep his noises to himself.

“Did some kid tease you?” I asked?

He immediately bristled and pulled away. “No! What would they do that?”

“Stupid me!” I wanted to respond. Instead I went with, “Then what’s the problem?”

“Well, you’re working so hard, and it costs money to go, so I feel bad saying this, but…” he burst into tears. “I’m not a fan of the great outdoors! Oh, Mama, I am a fan of the great indoors!”

I stifled my laughter, gave him a huge, promised him we’d turn on the air condition and watch TV the following week while his sister sweated her ass off with the other campers. “And lots of snacks,” he advised. “And lots of snacks.” Problem solved.

Here are a few images of what Stink considers to be ideal activity. Thank God he’s estimated to be SIX FOOT NINE. No joke. If not, he’d be bigger than a Whale at McDonalds.

dom 1 dom 3 dom 4 dom 5

 

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Follow Happily Ticked Off on Facebook!

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In an effort to get people connected, you can now find posts from this site as well as other inspirational T.S. related stuff, on Facebook.

Follow me here! Feel free to write me, also, at HappilyTickedOff@Gmail.com

Talk at you soon – and can’t wait to connect.

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Still Awful, Prognosis for Upswing

Saw Dr. McCracken on Friday. He admitted Stink’s tics were waaaaay up.

Four possible scenarios according to him:

1. He’s allergic to the pills (they think it’s likely a placebo since his blood pressure is not lower nor is he tired.)

2. He’s just experiencing waxing

3. He might have had strep throat 3 weeks ago and we didn’t catch it. His immune system could be shot to pieces. Today I will take him to urgent care and have his throat swabbed. It’s happeneed before where he presents no symptoms but has strep. It’s always fun to explain this to the nurse on call: “My son needs a throat culture… why, no, he does not have a sore throat… no, I am not an overbearing mother who has lost her marbles but yes, I will sit on you and make you beg for air if you DON’T DO THIS RIGHT NOW I’VE BEEN LIVING WITH INSANE TICS FOR 2 WEEKS JUST DO IT!!!!!!!!!!

4. He’s hyped up from State Testing

I’m going with #1.

There is always the fifth scenario

5. He is allergic to everything I am giving him, including the smell of my armpits, the un-organic apples I am buying because it’s not in the budget right now to spend $199/week at Whole Foods, the bird that visits us every day is crapping on his head causing neck rolls and eye twitches via bird turd absorption, he is allergic to my bad jokes and awful hair that hasn’t been dyed in 7 weeks or he’s just in that pre-spike Tween upswing of tics and I’m going to have to live with vocal tics blasting out 40 times a minute (no joke) until he sprouts pubes and goes to college.

Oh, it’s all so exciting! Thank you to my mom who took Stink overnight last night. And thank you to Vickie who took my daughter overnight. And thank you to Topanga T and Big B who showed up at my home with their two bulldogs. They brought expensive IPA, grilled shrimp wrapped in bacon, shortbread cookies and chicken salad. While I took a half hour breahter at a thrift store after dropping off the kids, T cleaned up my house. My husband bought me Starbucks. I love everyone. I really do. Even the tics!

* I bring this quick edit to thank Ellen and Martina for taking both Pip and Stink on Friday night so I could go to dinner with Rex. And thank you to Daria for playing backup. God bless my community of amazing women. I swear, more frustrating than tics would be a world without strong women who have my back. Please get yourselves a strong group of people in your lives – in any form (church, temple, school, whatevvvvaaah) to get you through the rough times and to sing with during the good ones. I could say I’m lucky – and I am – but I also work pretty hard to sustain this. I’m there for others and they are there for me. It’s the best gift in this life ever.

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I Changed My Mind on Meds – Because I Can

I’m back.  I’ve missed you all. How have you been?

I’ve been busy Ebaying and organizing my office. I’ve been swimming in Great Grandma Stella’s pool. I’ve been attempting to get in shape and get more sleep and pray and laugh and maybe, just maybe, I’ve been obsessing a teeensy bit more than a boatload of elephants at a circus parade about my decision to keep Stink off focus medication.

To be more specific than last time – because it’s just easier to not be cagey (like those poor elephants in the previous paragraph and shut up about that joke it was funny) – the idea of high functioning Aspergers came up at our last UCLA meeting. As I mentioned also, combined with many visits with teachers over the past few years, I decided to look into it more via a UCLA diagnostic study.

Shock of all shock, Stink fits the description for being “on the spectrum” and is a candidate for their drug study – one that uses Intuiv.  Intuiv is used for ADD and UCLA wants to see if it helps kids deal with Asperger symptoms. Continue reading “I Changed My Mind on Meds – Because I Can”