faith, God, humor, Tic-O Tuesday, Tic-Oh Tuesday, Tics, Tourettes

Tic-Oh Tuesday #4 – F/U on Jessica Smith

Happy Tic-Oh Tuesday! With the riots and Covid regulations and the news that my kids likely won’t have a ‘regular’ high school experience next year (likely it’ll be a hybrid of online and drastically changed physical school) it’s a shock I’m not ticking myself. (Unless you count eating M&Ms by the fistfuls and drinking more decaf than Donald Trump uses bottles of fake tan.)

Note: Drinking 12 “mugs” of Decaf – extra strong – really equals about 25 cups of decaf/day. Um, that’s really not normal, people. Plus it means I was really drinking about 4 cups of caffeine/day. I cut down to 3 mugs and, lo and behold, my skin came back with a glow and I’m sleeping. It’s amazing! Moving on…

Hope Despite a Crazy Nation

I am not saying I’ve been happy over the past few month’s events. And to say I’m scared for our nation is an understatement. But I also have hope. I believe, just like I did when I was raising my son, that the human spirit is resilient. I refuse to fall into despair for more than a day. What’s the point? I am still breathing. I still have my home. I still have food. Alexa is still churning out jazzy Christmas music for me. (Yes, it’s June. Don’t judge. It makes me think of family, egg nog and happy lights.)

It’s also clear that my dog isn’t too worried about the turn of events.

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Like Brooklyn, I can rest in the knowledge that this, too, shall pass. And when I can’t change something, I can reach out my hand and help another. Is she worried about the perfection of my bed not made? No she is not. Maybe I can relax, too.

Writing News

Okay, people, I FINALLY landed on what I’m doing with myself! I hired a coach to help me set up my own book coaching biz. More to come, but in my gut – the place where the God of my understanding lives – I KNOW this is the right track for me. It will allow me to teach (which I love… just not in big groups and with kids that smell of Ax body spray.)

It will allow me to work while my kids are at school (or, in the case of next year) it will allow me to manage them so they are actually turning in school work instead of watching copious amounts of Youtube. (Which, um, has been quite the challenge of late.) But mostly it’ll give me the opportunity to write another book myself. I know that books themselves don’t make a fortune, but as a gateway to a business (in my case, a coaching one) they can be quite lucrative. It will also allow me to work on my musical – my hobby – on weekends.

I’m thrilled! No more circling the drain!

And guess what? If I am WRONG, I fail. Big deal. But I don’t think so. Not this time. I’ll keep you posted. And I can always sub while I build up my clients. (But you know what? I think this is IT for me.)

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So enough about me and back to you lovely people. Jeff commented a few weeks back on the post I did on writer, Jessica Smith (Pen Name: Paula Ferri). He wrote:

I find it interesting how some people innately are able to simply accept the tics and others struggle so much with self-loathing. I wonder how much of it comes from the comorbid conditions. You and Jessica don’t mention any comorbidities, so perhaps they aren’t a big deal in her life. I’d love to hear a follow up from Jessica on how much of her TS experience is tics v. how much is other conditions like OCD, anxiety, etc. Personally, I smoosh them all into a big ball of wax I call Tourette.

I did a follow up interview on this and here’s what she said!

Jessica Smith (AKA Paula Ferri – her Tourettes inner voice gal pal. Watch out – she’s cheeky)

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1) Why do you not struggle with self-loathing now?
I don’t struggle with self-loathing now because I have worked really hard at it lol. It’s a process and the journey is different for everyone. I think the biggest change is understanding that these labels are all in my interpretation. I can be stubborn, which is often seen as a bad thing, while I choose to see it as tenacity, or the ability to stick to something I care about. I can hate myself for being stubborn or admire myself for my follow-through. <– This is HUGE. This works on ANYTHING!
We focus on the negative instead of the positive. Take one thing that you dislike and find a way to make it a good thing. How does it make you a better person? How do you use it as a strength instead of weakness? It doesn’t matter what co-morbidities I have, I choose how to use them. I take control of how I use them rather than feeling like a victim of my circumstances. 
2) Was there a period where you DID struggle? (ex: you said you were suicidal in H.S.)
Struggle is a part of life. I struggled with depression in high school through about 2010. I struggled with self-esteem and self-love through probably 2015. I still struggle with various things. One challenge is conquered and a new one arrives. Life isn’t easy and just because I don’t deal with one particular thing doesn’t mean there aren’t other issues I deal with.
My goal is to deal with things as they come, rather than shove them to the side until I have a pile of garbage to deal with all at once. That gets to a point of not being able to function. Been there. Not a place I want to return to. When you have a huge pile of challenges to deal with, you pick them out one at a time and deal with them. It takes time, and it’s hard. This is a huge contributing factor to my second book, Tragically Strong.
I’ve been through some really rough things, and honestly, TS and the co-morbids are the least of my concerns when I have been homeless and wondering where I can sleep that night, or when I was being sexually abused. They can affect the situations, yes. Co-morbids were certainly present and weren’t making it easier. So I dealt with it one day at a time. When things calm down, I work on the things that will make it easier next time life throws me a curveball. 
3) How do your co-morbid conditions (if any) affect you individually? 
Honestly, I don’t think about it much. I know they are there. I think I just make sure I have a proper outlet for them. I still am very detailed and OCD, so when I quilt, I allow myself to make incredibly tiny hand stitches. Quilting is more of an outlet, something that I do for me, so I have no deadline or timeline that it has to be complete. I can take as long as I want to make it perfect. it also comes in handy when editing and making sure my work is perfect.
When my anxiety flares, if I can I will go for a run to release all the excess energy. If I’m dealing with rage, I keep a stack of spare plates under my bed so I can pull them out and smash them, rather than destroying something I need. There are tricks to provide relief without destroying my life, no matter what co-morbid I may be dealing with at the time. I just try to channel it into something productive rather than destructive.
4) Do you consider yourself to have “Tourettes” and that’s it? All the co-morbids smooshed in? Or do you isolate them?
Half the time, I forget I have TS. It’s hard to know if I’m just angry or if the rage is a co-morbid. Where do you draw the line? Everyone has some form of OCD, ADHD, and ALL the co-morbids, it’s just the extent that it affects your day to day life. Rather than spending my time figuring out where the line is, if it is part of the TS or not, I would rather focus on what is going on around me and what I’m doing about it. So I guess I don’t really know how to answer the question. They are all part of me, so smooshed? Though I deal with them individually as they come up, so isolated? Does it matter? I don’t think there will ever be a definitive answer on this one way or the other. I’d rather live life than analyze it to pieces. Just do stuff.
5) What do you say to folks who truly struggle with their issues related to TS? 
This is going to sound heartless, but know I say it with all the love in the world… Everyone struggles. We all have different struggles, but you are not a victim. What are you doing about it? There was one night in particular where I was really struggling. There was a battle going on in my head. I felt so depressed and confused and worthless and alone and I was trying to “fight back” reminding myself of people who loved me and I could tell myself all day til I’m blue in the face all the good things… but I just wasn’t feeling it. It was exhausting and I was pleading for some kind of relief from these demons that were haunting me and from this emotional turmoil.
All of a sudden, I had this thought… “so what?” So what if I wasn’t loveable, or talented, or funny or pretty or smart or anywhere near what I wanted to be in life. So what? I may not be that right now, but that doesn’t mean I will forever be stuck that way. I can grow and change and learn and BECOME whatever I want. Life is a constant journey and we won’t attain perfection in everything. What is most important and what are you doing to get there? There are people who run track and there are people who run track with hurdles. ANY struggle is a hurdle that you have the power to jump over. Or go around. Or dive under. As long as you don’t sit in front of the hurdle and wait for someone to move it for you. Others can cheer you on, shout encouragement and ideas from the sidelines, but you have to run the race. You are not a victim. You still have options. Find something that helps, that works, and keep moving forward.
6) Would you ever consider coaching teens or parents of kids with TS?
I have considered it and would love to. I’m just still working out the specific details of what I want it to look like. But if someone out there wants to work with me, contact me and we’ll work something out.

Jessica’s Info

You can find Jessica on FacebookInstagramTwitterMedium and at her blog. And don’t forget to check out her books! Awkwardly Strong and Tragically Strong.

 

  • And she’s got a 3rd coming soon!

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Until next time,

May God grant you the ability to accept the tics you cannot change, have the courage to change the tics you can, and the wisdom to know the difference.

Andrea

My book is available on Amazon. (Note: It’s a special ed journey… your kid doesn’t need to have Tourettes to relate!) Follow me on Twitter@AndreaFrazerWrites or on Facebook. )

Want to Write a Book? Contact Me!

Need an editor, a mentor or a ghost writer? Contact me at HappilyTickedOff@Gmail.com or find me on Facebook @AndreaFrazerWriter

taco tuesday, Tic-O Tuesday, Tic-Oh Tuesday, Tics, Tourettes, Uncategorized

California Dreaming… On Such a Quarantine….

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So yes, it’s Tuesday! And… there’s not a Tic-O Tuesday post. I’m just writing to check in to say that we are all alive and doing okay. Dom is busy catching up on school work, as is his sister. As I told Tuskany, I’m pretty proud that I was able to sit down with each of them, go over their schedule and  help them chart their course to not flunk out of 10th and 11th grade toward turning in all their overdue assignments.

How are all of you doing???

I don’t know about you all, but it can be hard to find that line between “let the crap fall where it may” and over-parenting. I think I leaned a bit too far to the left, so I’m finding y way.

Just like this blog. I can’t seem to find my footing here anymore. Thanks for being here as I figure out my path. All I know is that I’m excited to have found a business coach, I’m narrowing down my niche for my writing, and I’m turning it into a for profit deal. It’s pretty darn exciting and I can’t wait to share it with you!

And, on a Tourettes note, my son is barely ticking at all. I mean… none. He’ll be 18 in January, so for you people out there with kids in the thick of the tics, hold tight and know that sometimes it clears up.

I’m so happy with my little family these days. And while I have definitely flipped around finding my footing with my writing and blog the past few years, I am so proud of the life I’ve created and focused on here in my little home in Los Angeles. That’s a great place for me to start my next journey.

Love you all.

Andrea

Tic-Oh Tuesday, Tics, Tourettes, writing

Tic-O Tuesday #2: Comic Ticker Fish Lee!

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Welcome to Tic-O Tuesday #2! Many of you might know Fish Lee from his stint on the A & E television show, “The Employables.” Others might know him from his Facebook Page @TourettesLife which features his amazing Tourette Syndrome art work. Still others might know him thanks to his bestselling Tourette’s comic book, T-Man & Hyperstrike (copies are sold exclusively on his Facebook Page @TourettesLife.)

As for me, I had the pleasure of getting to know him today by chatting his ear off for over an hour. We discussed everything from his childhood with tics, his life as a struggling artist who had to live through some pretty severe Tourette’s, and his current success today as one of the most sought after comic book illustrators around. (Plus he’s barely ticking thanks to the right combo of medication, sleep and weight loss.)

Fish surprised me, because he is more than just a talented artist. He’s a human being who took adversity and kicked it to the curb. If you’re like me – a parent who is worried about your child due to an unexpected diagnosis – you need to take a seat and get a boost of inspiration topping for your taco this Tico Tuesday.

Fish’s Past

“I wasn’t diagnosed until I was thirty,” Fish said. “It was confusing and tough to not know what was wrong with me.”

Fish began with mild tics as a child. He would repeat things he heard on TV, hold his breath and rub his nose. He would obsess over things and have a hard time reading social cues. “I had a pretty bad temper, too,” he said. “It wasn’t easy making friends.”

That said, he was not officially diagnosed as a child – not even when he stayed home for three weeks because of his eyes being crossed. “My single mom must have taken me to the doctor 15 times, and in the end, no one believed me that I couldn’t help it. The doctor said there was no way I could have had Tourette Syndrome since I never cursed.”

After having every imaginable test run on him to rule things out (from diabetes to severe heart issues) Fish just had to live with this “mystery illness.” He went on to say that most of the time it was manageable, but one to two times a year things would get really bad. “It was terrifying,” he said. “Especially because people thought I made it up to get attention. There was a point when I got better where I wondered myself if I had made it up.”

Lucky for him they disappeared in middle school and high school, but it wasn’t just because of genetics and good luck. “I self-medicated big time,” he said. Fish, who has now been sober for a good long while, fully admits what would have been better than not having tics at all would have been to feel that who he was, as he was tics and all, was okay. But at the time, that simply wasn’t the case.

A Rough Time of Tics

The tics came back with a vengeance after college when he was newly married and sober. At 21 it really became a problem, and by 30 he could barely see, walk or talk. His wife had to bathe him. Despite seeing a respected neurologist (who said there was no way he had Tourette Syndrome) it was not until he saw a news show with professor on TV who had the syndrome, along with a weatherman who reported that he had it also, that he realized, “That guy is me!”

When he realized he had true neurological disorder – where his brain misfired and mixed signals like crazy – he was sent to a movement specialist in Houston. The moment he walked into the room the doctor took a look at his severe shaking and asked, “How long have you had T.S.?” to which he responded, “I don’t have Tourette’s! I don’t say bad words!” She said, “Oh, yes, you do have it. The bad news is that it’s the worst case I’ve ever seen. The best news is that it can’t get any worse!”

Fish laughed as he recalled that story. It was the beginning of an understanding for his disorder.

While Fish’s wife, who he is now divorced from, was horrified that her husband would be confined to a wheel chair and potentially be on disability, Fish was thrilled. He finally had an answer. “It wasn’t Huntington Disease. It wasn’t a stroke. It wasn’t MS. It was bad, but I was alive!”

Unfortunately he had to stop working for a while with his condition worsening. He could no longer foster children – which he loved. But he had 3 of his own still at home. And in the process he was able to go on Facebook and meet other adults living with Tourette’s. He no longer felt alone. “My whole world opened up,” he gushed. “I wasn’t the only person needing help bathing and feeding myself!”

The Mouthpiece – A Miracle Cure

A turning point in Fish’s life was a mouthpiece that was made for him in Memphis, Tennessee. Made in conjunction with NFL mouth guards, it was a Godsend for Fish’s constant movement. “It was made of rubber and soft on the inside… no metal,” Fish said. “It truly worked.”

(Note from Andrea: I can’t offer you parents medical advice, but I have heard so many good things about this device. Google and find a doctor in your area or give me a call and I’ll work with you to help you locate one.)

Advice for Parents

Many parents are scared about their kids’ diagnosis, and that’s understandable, but Fish encourages everyone to be careful about how they talk about tics both to them directly and around them. “They have it tough enough as it is, but it doesn’t have to define them,” he said.

He, in fact, pushes his own son, Bear, to go way beyond what someone might expect of him. “I remember as a kid at 7 that I personally could not focus because of seven trains of thought in my head: a fight I had with someone… a girl… a TV show,” he said, “But at the same time, this wild thinking was also what made me unique.” He went on to gush,”Tourette’s kids are so smart, creative and empathetic. So what if they are a bit ‘weird’ to others. That’s what makes them so amazing.”

He continued, “I encourage all parents to fully accept their kids where they are at. So what if they tic!”

Fish’s Medication and Tic Management

As far as managing the tics, he himself is on a combo of Guanfacine and Primidone. “Everyone reacts differently,” he said, “But for me the combo of these work perfectly. There are some side effects, but it’s been worth it for what I am able to do every day in my life.” And boy what a lot he does.

Fish’s Current Life

Unlike his past where he was confined to his bed and a wheelchair, Fish spends his days illustrating for some of the biggest names in the business, including Eric N Bennett. He shops, drives and spends time with his 3 kids whenever he can (Marcus 20 – who is giving him his first grandbaby in June), Jay (19) and Elisha (“Bear” /16 who, according to Fish, is “killing it” with his tics).

Fish’s Projects These Days

Fish has inked Empyrean Command #0 and illustrated Sentinels #269 and Fivestar #3 (coming after after Covid) (pencils, inks, colors).

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He colored The Power Company #2 (and has #3 in the works which will be done after quarantine is over.)

CoverA.

Most of his stuff is up for sale at www.indyplanet.com Fivestar.

He is working on Sentinels #270 right now, then the next Fivestar, then the next Power Company which will be all of his art work. “I’m already booked for most of the rest of the year,” he says proudly. And with artwork like this, it’s understandable!

Other Social Links: Find Fish

@TourettesLife on Facebook

WWW.MrFishcomics.com

Instagram

He can also be found on Deviant Art and on Twitter 

Twitter

Your Child Is not His or Her Tics!

As a writer and mother of a beautiful 17 year old with Tourette’s, I can’t tell you what a thrill it was to speak to Fish today. I want to encourage all of you parents to keep coming back every Tuesday where we’ll bring a new success story to you. And if you, yourself, have Tourette’s and are thriving (or know someone who is – young or old) drop me a line at HappilyTickedOff@Gmail.com. I’d love to consider them for a Tico-Tuesday post or at least as happy face or art work on my Success Story wall!

Until next time,

May God grant you the courage to accept the tics you cannot change, the courage to change the tics you can and the wisdom to know the difference.

Andrea