faith, God, humor, Tic-O Tuesday, Tic-Oh Tuesday, Tics, Tourettes

Tic-Oh Tuesday #4 – F/U on Jessica Smith

Happy Tic-Oh Tuesday! With the riots and Covid regulations and the news that my kids likely won’t have a ‘regular’ high school experience next year (likely it’ll be a hybrid of online and drastically changed physical school) it’s a shock I’m not ticking myself. (Unless you count eating M&Ms by the fistfuls and drinking more decaf than Donald Trump uses bottles of fake tan.)

Note: Drinking 12 “mugs” of Decaf – extra strong – really equals about 25 cups of decaf/day. Um, that’s really not normal, people. Plus it means I was really drinking about 4 cups of caffeine/day. I cut down to 3 mugs and, lo and behold, my skin came back with a glow and I’m sleeping. It’s amazing! Moving on…

Hope Despite a Crazy Nation

I am not saying I’ve been happy over the past few month’s events. And to say I’m scared for our nation is an understatement. But I also have hope. I believe, just like I did when I was raising my son, that the human spirit is resilient. I refuse to fall into despair for more than a day. What’s the point? I am still breathing. I still have my home. I still have food. Alexa is still churning out jazzy Christmas music for me. (Yes, it’s June. Don’t judge. It makes me think of family, egg nog and happy lights.)

It’s also clear that my dog isn’t too worried about the turn of events.

sss

Like Brooklyn, I can rest in the knowledge that this, too, shall pass. And when I can’t change something, I can reach out my hand and help another. Is she worried about the perfection of my bed not made? No she is not. Maybe I can relax, too.

Writing News

Okay, people, I FINALLY landed on what I’m doing with myself! I hired a coach to help me set up my own book coaching biz. More to come, but in my gut – the place where the God of my understanding lives – I KNOW this is the right track for me. It will allow me to teach (which I love… just not in big groups and with kids that smell of Ax body spray.)

It will allow me to work while my kids are at school (or, in the case of next year) it will allow me to manage them so they are actually turning in school work instead of watching copious amounts of Youtube. (Which, um, has been quite the challenge of late.) But mostly it’ll give me the opportunity to write another book myself. I know that books themselves don’t make a fortune, but as a gateway to a business (in my case, a coaching one) they can be quite lucrative. It will also allow me to work on my musical – my hobby – on weekends.

I’m thrilled! No more circling the drain!

And guess what? If I am WRONG, I fail. Big deal. But I don’t think so. Not this time. I’ll keep you posted. And I can always sub while I build up my clients. (But you know what? I think this is IT for me.)

sss

So enough about me and back to you lovely people. Jeff commented a few weeks back on the post I did on writer, Jessica Smith (Pen Name: Paula Ferri). He wrote:

I find it interesting how some people innately are able to simply accept the tics and others struggle so much with self-loathing. I wonder how much of it comes from the comorbid conditions. You and Jessica don’t mention any comorbidities, so perhaps they aren’t a big deal in her life. I’d love to hear a follow up from Jessica on how much of her TS experience is tics v. how much is other conditions like OCD, anxiety, etc. Personally, I smoosh them all into a big ball of wax I call Tourette.

I did a follow up interview on this and here’s what she said!

Jessica Smith (AKA Paula Ferri – her Tourettes inner voice gal pal. Watch out – she’s cheeky)

sss

1) Why do you not struggle with self-loathing now?
I don’t struggle with self-loathing now because I have worked really hard at it lol. It’s a process and the journey is different for everyone. I think the biggest change is understanding that these labels are all in my interpretation. I can be stubborn, which is often seen as a bad thing, while I choose to see it as tenacity, or the ability to stick to something I care about. I can hate myself for being stubborn or admire myself for my follow-through. <– This is HUGE. This works on ANYTHING!
We focus on the negative instead of the positive. Take one thing that you dislike and find a way to make it a good thing. How does it make you a better person? How do you use it as a strength instead of weakness? It doesn’t matter what co-morbidities I have, I choose how to use them. I take control of how I use them rather than feeling like a victim of my circumstances. 
2) Was there a period where you DID struggle? (ex: you said you were suicidal in H.S.)
Struggle is a part of life. I struggled with depression in high school through about 2010. I struggled with self-esteem and self-love through probably 2015. I still struggle with various things. One challenge is conquered and a new one arrives. Life isn’t easy and just because I don’t deal with one particular thing doesn’t mean there aren’t other issues I deal with.
My goal is to deal with things as they come, rather than shove them to the side until I have a pile of garbage to deal with all at once. That gets to a point of not being able to function. Been there. Not a place I want to return to. When you have a huge pile of challenges to deal with, you pick them out one at a time and deal with them. It takes time, and it’s hard. This is a huge contributing factor to my second book, Tragically Strong.
I’ve been through some really rough things, and honestly, TS and the co-morbids are the least of my concerns when I have been homeless and wondering where I can sleep that night, or when I was being sexually abused. They can affect the situations, yes. Co-morbids were certainly present and weren’t making it easier. So I dealt with it one day at a time. When things calm down, I work on the things that will make it easier next time life throws me a curveball. 
3) How do your co-morbid conditions (if any) affect you individually? 
Honestly, I don’t think about it much. I know they are there. I think I just make sure I have a proper outlet for them. I still am very detailed and OCD, so when I quilt, I allow myself to make incredibly tiny hand stitches. Quilting is more of an outlet, something that I do for me, so I have no deadline or timeline that it has to be complete. I can take as long as I want to make it perfect. it also comes in handy when editing and making sure my work is perfect.
When my anxiety flares, if I can I will go for a run to release all the excess energy. If I’m dealing with rage, I keep a stack of spare plates under my bed so I can pull them out and smash them, rather than destroying something I need. There are tricks to provide relief without destroying my life, no matter what co-morbid I may be dealing with at the time. I just try to channel it into something productive rather than destructive.
4) Do you consider yourself to have “Tourettes” and that’s it? All the co-morbids smooshed in? Or do you isolate them?
Half the time, I forget I have TS. It’s hard to know if I’m just angry or if the rage is a co-morbid. Where do you draw the line? Everyone has some form of OCD, ADHD, and ALL the co-morbids, it’s just the extent that it affects your day to day life. Rather than spending my time figuring out where the line is, if it is part of the TS or not, I would rather focus on what is going on around me and what I’m doing about it. So I guess I don’t really know how to answer the question. They are all part of me, so smooshed? Though I deal with them individually as they come up, so isolated? Does it matter? I don’t think there will ever be a definitive answer on this one way or the other. I’d rather live life than analyze it to pieces. Just do stuff.
5) What do you say to folks who truly struggle with their issues related to TS? 
This is going to sound heartless, but know I say it with all the love in the world… Everyone struggles. We all have different struggles, but you are not a victim. What are you doing about it? There was one night in particular where I was really struggling. There was a battle going on in my head. I felt so depressed and confused and worthless and alone and I was trying to “fight back” reminding myself of people who loved me and I could tell myself all day til I’m blue in the face all the good things… but I just wasn’t feeling it. It was exhausting and I was pleading for some kind of relief from these demons that were haunting me and from this emotional turmoil.
All of a sudden, I had this thought… “so what?” So what if I wasn’t loveable, or talented, or funny or pretty or smart or anywhere near what I wanted to be in life. So what? I may not be that right now, but that doesn’t mean I will forever be stuck that way. I can grow and change and learn and BECOME whatever I want. Life is a constant journey and we won’t attain perfection in everything. What is most important and what are you doing to get there? There are people who run track and there are people who run track with hurdles. ANY struggle is a hurdle that you have the power to jump over. Or go around. Or dive under. As long as you don’t sit in front of the hurdle and wait for someone to move it for you. Others can cheer you on, shout encouragement and ideas from the sidelines, but you have to run the race. You are not a victim. You still have options. Find something that helps, that works, and keep moving forward.
6) Would you ever consider coaching teens or parents of kids with TS?
I have considered it and would love to. I’m just still working out the specific details of what I want it to look like. But if someone out there wants to work with me, contact me and we’ll work something out.

Jessica’s Info

You can find Jessica on FacebookInstagramTwitterMedium and at her blog. And don’t forget to check out her books! Awkwardly Strong and Tragically Strong.

 

  • And she’s got a 3rd coming soon!

dd

Until next time,

May God grant you the ability to accept the tics you cannot change, have the courage to change the tics you can, and the wisdom to know the difference.

Andrea

My book is available on Amazon. (Note: It’s a special ed journey… your kid doesn’t need to have Tourettes to relate!) Follow me on Twitter@AndreaFrazerWrites or on Facebook. )

Want to Write a Book? Contact Me!

Need an editor, a mentor or a ghost writer? Contact me at HappilyTickedOff@Gmail.com or find me on Facebook @AndreaFrazerWriter

taco tuesday, Tic-O Tuesday, Tic-Oh Tuesday, Tics, Tourettes, Uncategorized

California Dreaming… On Such a Quarantine….

sss

So yes, it’s Tuesday! And… there’s not a Tic-O Tuesday post. I’m just writing to check in to say that we are all alive and doing okay. Dom is busy catching up on school work, as is his sister. As I told Tuskany, I’m pretty proud that I was able to sit down with each of them, go over their schedule and  help them chart their course to not flunk out of 10th and 11th grade toward turning in all their overdue assignments.

How are all of you doing???

I don’t know about you all, but it can be hard to find that line between “let the crap fall where it may” and over-parenting. I think I leaned a bit too far to the left, so I’m finding y way.

Just like this blog. I can’t seem to find my footing here anymore. Thanks for being here as I figure out my path. All I know is that I’m excited to have found a business coach, I’m narrowing down my niche for my writing, and I’m turning it into a for profit deal. It’s pretty darn exciting and I can’t wait to share it with you!

And, on a Tourettes note, my son is barely ticking at all. I mean… none. He’ll be 18 in January, so for you people out there with kids in the thick of the tics, hold tight and know that sometimes it clears up.

I’m so happy with my little family these days. And while I have definitely flipped around finding my footing with my writing and blog the past few years, I am so proud of the life I’ve created and focused on here in my little home in Los Angeles. That’s a great place for me to start my next journey.

Love you all.

Andrea

Tic-O Tuesday, Tics, Tourettes, writing

Tic-O Tuesday #3 – Writer Jessica Smith AKA Paula Jean Ferri, Her Ticking Muse

sss

It’s Tic-O Tuesday! Today I had the pleasure of Zooming with Jessica Smith, who many of you know from her Jars of Joy video series on Facebook. With her beautiful long hair and ray of sunshine personality, you might think she’s just another author with a story to tell. But then a little squeak comes out that reminds you: Oh, yeah, she also has Tourette’s! And she’s dang proud of it, too!

Tic Acceptance All the Way

Jessica’s tics don’t bother her. In fact, as she talks about in her first book Awkwardly Strong: From Insecure to Inspirational, she is in full acceptance of who she is regardless of some occasional squeaks and body movements.

1

“My tics are hilarious,” she gushes. She’s even named them “Paula” who, being the sassy ticker and diva that she is, also takes credit for having written the books (hence the name Paula Jean Ferri on the cover.)

Jessica’s Tic History

Jessica wasn’t diagnosed with tics at an early age like most people. “I’m an outlier,” she says. “I not only was a woman with Tourette’s – with 75% of cases being men – but I also didn’t start ticking until age 17. You might say I grew into my tics instead of out of them!”

Jessica now lives in Mill Creek, UT, but she grew up in Logandale, Nevada. Her life wasn’t all sunshine and roses (as described in her second book Tragically Strong: Navigating the Change When Life Turns You Upside Down).

2

But her attitude, along with her faith, kept her moving toward the positive. Her sense of humor shone through the interview and, once again, it was a big reminder to me – as the parent of a ticker – that the right attitude is everything.

Her First Tics at 17

“My first tic came out like a strong squeak – as if I was stepping on one of those dog chew toys,” she said. “Ironically, it was at the library!” She laughed. “I started doing it two times in a row… then three times in a row. My co-workers started to count them for me!”

Her tics didn’t stop there. They followed her to university where she was studying music with the full intent of being a choir teacher. “My tics starting mimicking the notes on the scales,” she chuckled. “Because of my Echolalia (mirroring of different sounds around me) I would also mimic the time clock at work. Like a cough or a sneeze, I just couldn’t stop it.”

Her Greatest Tic Challenge

She went away on a mission for two years and came back with the intention of getting a degree in social work. Unfortunately, the professors weren’t too encouraging of her abilities to work with others one-on-one due to her “distracting” noises. She was so disenchanted by her teachers’ reactions that she began failing her classes – a very new phenomenon for this straight A student.

She might have dropped out had a psychologist not insisted she come in for counseling. He took one look at her, knew she had Tourette’s, and recommend she continue pursuing a degree more suited for her needs. (She ended up with a degree in International Culture Studies with an emphasis in Communications!)

Work with What You Got

I always tell parents I work with that it’s not what happens to us (ex: an unexpected Tourette diagnosis) but how we adapt to it that makes all the difference. Life changes! If we can embrace it for what it is – a gift to do things differently – life can take on beautiful meaning and purpose! In Jessica’s case, she wrote a thesis paper on Tourette’s and How it Affects Communication. It got such praise that she then turned that into her first book, Tragically Strong.

Family Support

Jessica’s family was as surprised as she was with her tics, and while they were never outright mean to her, it took a while for them to get used to. “My father’s job as a mechanic was to listen to squeaking parts under the hood,” she said. “So you can imagine driving with me how that must have thrown him for a loop!” she laughs. Her younger brother would sometimes ask her to “close her mouth” so the noise wouldn’t escape. To that, Jessica simply responded the way many a good big sister does. “Um…. NO.”

Diagnosis at 24 and Treatment

It wasn’t until age 24 that Jessica was officially diagnosed with Tourette’s. And listen up, parents: this is what she did to cure the tics…. Are you ready?….

Nothing.

“They are what they are!” Jessica said proudly. “I can’t tell you how many cool people I’ve me from them… and all the stories I have.” Her tics never kept her from dating. And Paula (her tics) is particularly delightful at parties. At one point she shrieked fairly loudly and unexpectedly. A man came running into the room, flirting, “Is that your mating call? ‘Cause I like it!” (He felt terrible when he discovered later that she had T.S., but Jessica assured him it was “No big deal.”)

A Great Attitude and Sense of Humor is Everything

It’s Jessica’s attitude toward tics that has made all the difference in her life. She is a writer first, not someone with tics. “I encourage all parents to just let their kids be who they are. That’s what they need more than anything else.” I couldn’t say it better myself.

Need a Tic Coach?

If you are reading this, and need to talk to a parent who has “been there, done that” don’t hesitate to reach out and contact me. I will talk to you via Zoom or phone, share my story, and help you walk this new path by your side. I’ll even throw in my book for free. Email me at HappilyTickedOff@Gmail.com for a free 30 minute consultation!

Jessica’s Taco Choice

Being Tico-O Tuesday, I asked Jessica to describe what she’d eat on her taco should she ever join me and my fellow ticker for dinner.

“I’d like it on a corn tortilla (fried) with meat, cheese, shredded lettuce, diced tomato, no salsa, guacamole and sour cream.” I was a bit unsure if her inner diva, Paula, would approve of such excess. But it turns out Jessica’s love of tacos trumps Paula’s princess ways.

Jessica’s Info

You can find Jessica on Facebook, Instagram, Twitter, Medium and at her blog. And don’t forget to check out her books! Awkwardly Strong and Tragically Strong.

As always,

May God grant you the ability to accept the tics you cannot change, have the courage to change the tics you can, and the wisdom to know the difference.

Andrea

My book is available on Amazon. (Note: It’s a special ed journey… your kid doesn’t need to have Tourettes to relate!) Follow me on Twitter@AndreaFrazerWrites or on Facebook. )

Want to Write a Book? Contact Me!

Need an editor, a mentor or a ghost writer? Contact me at HappilyTickedOff@Gmail.com or find me on Facebook @AndreaFrazerWriter