Tag: tourette syndrom

I don’t know if you can relate to this, but I’m reacting to this Covid 19 crisis in one of two ways:

1. Everything is Fine! I will not freak out. All I can do is wash my hands, cut back on trips to the market, have faith that my job will still be there in a few months and enjoy every second I can with my kids before they graduate and try to block the memory of their mother shaking her bootie to Maroon 5’s “Sugar” every Taco Tuesday like a menopausal groupie.
2. I am Freaking the BEEP Out.

Since #2 isn’t all that attractive, I’ve given myself some serious boundaries to make life more enjoyable in the Casa de Tic. And honestly, folk, after navigating Tourettes for over 10 years, I can promise you this: I might not have the “cure” for tics in the form of a pill or a magic diet, but my attitude goes a long way in keeping the symptoms down.

Yup, when I’m relaxed and not creating undue stress (yes, yelling and being generally a crazy person about where to place the potentially Corona infested Cheetos is not particularly helpful) my son is calm. And when he’s calm, there’s less tics!

Here’s 5 more things I’ve implemented on a daily basis that have gone a long way in setting a happy tone for the home.

1. Don’t Sweat the Small Stuff: If my son wants to have the last word on why he’s not comfortable going to the beach, despite quarantine restrictions being lifted in Ventura County – and despite my daughter and I being clear that we are going to stay 20 feet from people and just walk on the shoreline – that’s his right. I don’t have to cajole him. I don’t have to guilt him into leaving the house. I can worry all I want about him having been in the same two rooms of this house for the past six weeks, and conjure up all sorts of worst-case scenarios that involve a 35 year old man eating gluten free pizza in my basement in two decades, but I don’t have to share those projections with my son. (Also, we don’t own a basement, so that works out, doesn’t it?)
2. Be Intentional with My Tone: Not all days are going to be winners for me, but for the most part, if I set out to have a good day, I have a good day. That often means being intentional about my attitude, even when things aren’t going particularly amazing for me. (Ex: Disagreements with my hubby about money, or my website having issues, or fear about this virus.) Despite perfection I can still play Michael Buble in the kitchen while I make toast. I can still read books every morning and take my mind into a new world rather than my own. I can still blast musicals on my way to Costco and call other people and ask how they are doing. When I go about making myself happy, I don’t take it out on my kids – especially my sensitive ticker.
3. Stay Current: By “current” I mean that I have stopped living in the past or the future. I get to live in the “now” where the magic happens. The past, for me, includes how things used to be before he was diagnosed with Tourettes. (Back when he was three, and I thought his entire life was going to unfold as perfectly as an origami crane. But with no wrinkles. Nope, unlike you suckers, my baby bird would be perfect!) By “future” I mean I stopped judging his current situation by some ideal far ahead of where he is at this moment. I wasted a lot of years drowning in the fear of what was, or what could be, instead of grasping onto the gift of this very beautiful present. Staying current has made all the difference. I can only do this by sticking to #4:
4. Gratitude: I am in so much gratitude these days. Yes, Dom’s tics are almost gone now – and I’m so grateful! (Parents of new tickers, did you hear that? There is HOPE!) But I’m in gratitude of far more things than tics. I’m grateful for a home. For a husband who I love and can count on. For a daughter who wants to sing show tunes with me. For a mom who still lives 15 minutes from me. For more friends than I can shake a very big stick at. By focusing on what is working in my life, as opposed to what is not, life is so much sweeter.
5. Relaxation: With this imposed quarantine, I know how lucky I am to have a 4 bedroom house to hunker down in. I don’t want to waste this precious gift of time freaking out. Granted, I have had a few days of misery. And I give myself slack for those. This is a new normal and I’m an extrovert! It’s haaaard! But for the most part, I’ve had a ton of joy. Much of this is because I have given myself permission to keep a lighter pace. My kids also have had a lighter pace, and this helps in keeping tics to a minimum. Throw in a lot of dancing and really bad karaoke and you have one happy Andrea which, always, goes back to #1: A happier tone in the home.

Positive Outcome Stories

I want to share a snippet of a letter I got from a dad who says he read my book two times. He wrote me to let me know how happy he was that this blog, and my next book, would be focusing on positive outcomes. To summarize, he wrote, “The internet is full of worse case scenarios…we need more writing out there that reminds us worried parents that our kids will be okay.”

So that, my friends, is what you will continue to get. You will get a ton of posts that remind you that a positive attitude can go a very very long way in raising a child that is successful despite a few tics. And, of course, I will continue to bring you interviews with top experts, parents of kids who are older and doing well (right, Carrie?), videos, books and… wait for it… a chance for you parents of younger kids to sign up to play Minecraft with Dom.

In closing, as I always say, thank you for reading. If you’re scared, feeling alone, worried about your child or generally confused about what to do next, I have a suggestion for you. Sign up for this blog (bottom of this page), join me on Facebook and let this sink into your bones: Your child is perfect, Tourettes or not. You are not alone. We’re in this together.

So happy almost Monday! And remember, if you can’t fix the tics, fix yourself! Do something fun for yourself, okay? I promise you – it will make all the difference.

Until next time,

May God grant you the serenity to accept the tics you cannot change, the courage to change the tics you can and the wisdom to know the difference.

Andrea