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New To Tics? Do THIS: Tic Tuesday #3

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Because I’m lazy, I still have to make dinner, and I’m ready to call it quits for the night, I’m re-working a response to an email I received a few days back. This mama is new to Tourettes and wanted to know if she should consider getting a mouthpiece for her son. My honest response was “No.” I think there’s other things you can try first.

Mouthpiece that Cures Tourettes?

See my article from a few years back on this.

Before investing time and energy into an appliance, I would start with basics first. (Ex: Flying across the country spending thousands of dollars for a dentist is like getting a $500 Vitamix Juicer when you’ve never tried eating apples. Start small!)

How to Proceed with Mild Moderate Tics

Here’s what I suggest – and I’m open to yours!

1. MTHFR:  Get your child tested for the MTHFR gene. See blog last week.

2. Fancy Vitamins: Once you have results – and assuming your child has the wonky MTHFR gene (which means they are not processing vitamins like non-wonky processing MTHFR folk) plunk down cash for good methylating vitamins.

3. Non-Fancy Vitamins: If no wonky gene exists, then just do regular vitamins and supplements.

4. What supplements? I’ll be interviewing a doc soon on this and let you know via blog to share the love (and don’t want to give you wrong info). If you want to start something right away, I’d go with Magnesium to calm the nerves. Many kids who tic are low in magnesium. You can look into Taurine as well, but again, I’d wait until you’ve seen a naturopath.

5. Food Tests: Get your child tested for food allergies via 23 and Me saliva test or blood test. Have results read through a naturopath or holistic doctor who can then tell you what he or she is allergic to.

6. Keeping It Simple: Don’t want to deal with the food allergy test? Start with going gluten-free. Then add in dairy free if the tics aren’t better. Then, if tics still persist, add supplements. If the tics subside, put dairy back in and see what happens.

The Goose Chase! Help!

The thing about tics is that it is a bit of a goose chase. Just when one tic goes away, another comes back. It’s confusing. My book talks a lot about this. It can be hard to tell what really helped. Was it going gluten free? Going dairy free? The unicorn dust from the magical kingdom of WTF? The truth is, it’s a cheeky disorder. How much do you want to play Columbo? How much do you want to let go? It’s up to you. I always land on the “Is my kid happy and if so, time to let it go” bit. (Note: I used to land there without major kicking, screaming and more cursing than what I feared my four year old’s fate would be. I worried for nada. He’s great!)

“My Kid is Ticking – I Can’t Calm Down!”

Been there, done that. But if you don’t take it one step at a time, you won’t know what is working and what is not.

Get a Naturopath or a Guide

If you’re like me when I was new to this, it would be helpful to have a calm and rational person help you plan out your path so you don’t feel so alone. If you can afford it, do this for yourself! If not, get yourself into a Facebook group and find some rational mom who can be your walking partner through this crazy disorder.

It’s Going to Be Okay

It is. I promise. Very few kids have horribly severe tics. (Some do, but many don’t.) You don’t have to live in fear. You can take this one step at a time.

Hope this helps!!!!!!!!!!!!!!!

 

sssLeave a Comment

Are you enjoying these Tic Tuesdays? Is it detailed enough? I’m not a doc, so my goal is to get you moving but not give you absolutes. Please let me know so I can improve! Email works if you don’t want to comment out of privacy.

My book is available on Amazon. Follow me on Twitter@AndreaFrazerWrites or on FB

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MTHFR Gene Post #2 – Got Tics? READ THIS!

Happy Tic Tuesday!

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As you can see, my pit bull lab mix is terribly excited about this topic. And you will be, too! And so, my friends, I give you….

More on the MTHFR Gene!

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No, it’s not translated as the Mother Fxxer Gene (though if your child has a defect in this gene, it may cause tics, Tourettes or a variety of other issues, which could cause you to curse in frustration. But there’s hope! Just read along.)

MTHFR stands for Methyl-Tetrahydrofolate Reductase, an enzyme which is in charge of the process of methylation in every each and every cell in your body. Methylation is a fancy way of saying “absorption.” If your body isn’t absorbing the nutrients, your body can’t function at an optimal level.

A Faulty MTHFR Gene – 2 Types

There are usually 2 types of MTHFR variations that can cause issues:

  • Homozygous
  • Heterozygous

Oh no! On top of being a mother fxxr we’re also dealing with gay vs. straight genes? Peace, people! It’s less confusing than it seems.

2 Genes Broken Down

If your child is Heterozygous (AKA: A1298) this means that he or she has one affected gene from the parent and one normal gene. It means their enzyme function will run at approximately 60% compared to a child that has no mutated MTHFR gene.

If your child is Homozygous (AKA C677T) it means they have 2 mutated copies of the gene, and their enzyme effience/absorption abilities plummet to 20 or 10%.

Vitamins With Optimal Absorption Are Key

Here’s where hope comes in. Once you know if your child has a gene mutation that is not processing his or her vitamins, then you can treat it through methylating vitamins. They are often much more expensive than regular vitamins, but the idea is that your child’s body will function at a much higher level than before as it’s they will finally be absorbing the fuel they need to run. Farmer Stacey uses these for her son. Again, you’ll want to wait until your child is tested and talk to a doctor about the correct dosage!

 

How to Test? How to Proceed?

You can test your child with a saliva test through 23 and Me 

Apparently the results are really hard to read, so you need to run it through another source. It can best be explained at Dr. Lynch’es website here. It’s worth checking out his site as there are also blood draws that you can do and run through labs. Here is a cut and paste of what he says to spell it out for you. Again, see link above to get more info!

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So What’s Next?

I am obviously no doctor – I’m just a concerned mama who is going to get her teenage boy tested. I advise that once you get the test results from a lab of your choice (blood or saliva – see Dr. Lynch’s site for better details), talk to an integrative doctor or check back with me in a few months and I’ll tell you what vitamins I am using.

Dr. Jill Carnahan on MTHFR

Dr. Jill Carnahan (image from her site) is another great source on the subject. She breaks it down with a good dose of science and layman’s terms.

Update on Stink’s Tics

And on that note, I’m off to watch an episode of Gravity Falls with my son. For those that have followed me from the beginning, Stink is doing amazing. He’s no longer dairy free and on no vitamins. Some shakes and tremors, but happy to be a ticker. I don’t push him toward any treatment, but if he does have the MTHFR gene I will be insisting he take a folating vitamin every day for his health. I will do so not as a controlling “I’m going to fix your tics” teenage mom. I honestly don’t believe it’s my business to do that anymore. I will insist due to his health. After all, he’s his own person. My only job is to keep him safe and love him like a MTHFR.

And I do.

Until next time,

Andrea

My book is available on Amazon. Follow me on Twitter@AndreaFrazerWrites or on FB

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That’s One Mother FTHR Gene – MTFHR and Tics

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(photo credit: Mommypotamus)

Welcome to Tic Tuesday!

I’m so excited you’re here! But… I won’t lie – I’m tired. I have been up since 4am and it’s almost midnight in Mt. Shasta – a beautiful mountain town in Northern California that I’m just visiting for the first time.

My dear friend Stacey, who I met when she read me over at BabyCenter, flew me out to the home she shares with her five boys. FIVE. That’s about as shocking to me as the original diagnosis of T.S. my son got 10 years ago.

The reason I’m telling you about Stacey’s boys? Irony of irony – one of her sons developed a pretty serious tic condition right after leaving my house 2 years ago. (Quick – get off the computer before you catch Tourettes!) Stacey has done a LOT to heal her son’s symptoms, including the GAPS diet and following an environmental doctor’s supplement plan. I’ll talk more about these things in my next posts, but for now I want to talk about the MTHFR gene which, when undetected, had prevented her son’s healing. It might be affecting your kid, too!

MTHFR – What is That?

MTHFR stands for the methylenetetrahydrofolate reductase gene. Say it five times fast: methyl-ene-tetra-hydro-folate-reductase.

To be more simple, it’s an enzyme in our bodies. This enzyme adds a methyl group to folic acid which helps the body properly use vitamins such as B6. If the gene is mutated, your child’s body is not able to get the nutrition it needs. This can cause all sorts of problems from mood swings, ADHD issues, depression and, you guessed it, tics.

Treatment

Specific vitamins can be given to your child that will help him or her absorb the nutrients they need. I will ask my friend specifically about the brand she uses and post before the week is up.

How to Diagnose

The diagnosis for this mutation is pretty simple. You can request a blood test from most naturopaths or do a saliva test for $199 through 23 and Me.

Excellent Blog Post on MTHFR

The Mommypotamus blog does an excellent job explaining more about the MTHFR gene here.

I’d talk more about how a man ten years younger than me flirted with me for two hours on the plane. (Yes, I told my husband. Relax, people. We only made out at the gift store later talked.  And it made me realize, as nice as he was, I’m so glad not to be in the dating world. I have the personality of an outgoing New Yorker but the insides of a stodgy librarian. It’s fun being me!)

I’d tell you about how Stacey had to bolt from the couch downstairs because a black bear decided to dig through her trash can and eat some of her organic GAPS brownie leftovers.

I’d tell you about how my sweet husband was kind enough to get up at 4am to get his wife onto a bus to get me to an airport where I almost lost my breakfast waiting for the second shuttle to arrive at the airport gate where I could dodge into a restroom.

But if I do, I might start ticking, and it’s not from the MTHFR gene. I’m just bone crushing tired.

New to T.S.? Come back next week!

You are not alone. Your child will be fine, and so will you. I promise. I do.

Until tomorrow,

My book is available on Amazon. Follow me on Twitter@AndreaFrazerWrites or on FB

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