When I was in the middle of my big “do I or do I not follow through with this UCLA study/medication” I spoke to one of the doctors. She once again told me the pro’s and cons of Intuiv. The pros: It’s been on the market for 20 years. It’s got very few side affects. The cons: It can make a child really sleepy and sometimes faint due to its blood pressure lowering attributes.
I was still so iffy. It seemed weird to push my kid toward medication when Stink was content with himself. “He’s happy. He loves his tics!” I said to Dr. J..
Her response was a bit startling to me. “Yes, you’ve said that and so has he. It seems kind of odd, though… this whole liking his tics thing. What’s the meaning behind that do you think?”
I had to pause. What was she implying? That somehow Stink was living in Delusion Land? That perhaps I, as a mother, had been feeding my kid the Kool Aid all these years? (Note: This Kool Aide would of course be organic and dye free.)
Dr. J is really great, so I’m not annoyed at her, so much as surprised by the reasoning. Isn’t it possible that a child could like themselves, despite a few tics and twitches?
Is it possible… not to pat myself on the back (but it beats the alternative of flogging myself with fear so go with me)… that Stink was brought up to believe that he, as a person… as a soul… is valid, despite a few “flaws” in the form of tremors and twitches?
And is it at all plausible that this self-confidence is not a side-effect of “potential” Aspergers – the syndrome where people are considered non-self aware and self-focused to an extreme – but the ease in his own skin has to do with the fact that… here’s the zinger, folk…. he actually likes himself.
This leads me, once again, to my feelings about God. (Sorry to you non-faith based folk.) As you know, I’m on a Christian path. It’s one where I have my doubts right along with my
blind acceptance of improbablilty faith. But the crux of the matter is this: If some dude really came to life as God in human form, was nailed to a cross, then rose from the dead to have new life, isn’t it possible that my own very human son, through the grace of God, could rise above his own wonky circumstances and love his life?
From my impartial perspective (ha ha… like I could ever be impartial about this little Stinker) my son’s love for his differences come from a combo of 3 main things:
* Home life
Like the trinity I look towards as strength and support for my joys and sufferings, how can I not look to the trinity of those three attributes and give all of them a little bit of credit toward his contentment?
Never to be underestimated or overlooked, so much of who Stink is comes from his sister. She is his greatest fan and advocate. As the sibling of a “special needs” brother, I am acutely aware that she needs the same sort of honor and time as I give him.
The other day, I said to her, “Pip, you know, there are groups for sisters of kids like Stink. I could totally sign you up if you’d like.” Her eyes got wide and she squealed, “You mean, a group for sisters who have brothers as awesome and funny as Stink?!”
I laughed out loud. What do I owe such an amazing daughter to? Perhaps more of the 3 above. I’m beyond grateful.
In closing, going along with my gut (or as my faith calls it, The Holy Spirit) I really felt compelled to follow-up on this drug study, despite Stink’s protests. “I won’t do it!” he stated in the bathtub one night. “I will spit out those pills! I will pretend like I’m swallowing them and stuff them down the toilet!”
“UCLA is going to give us $25/week for eight weeks for participating in the study. I’ll give it to you to save toward Disneyland tickets,” I offered, figuring he’d turn me down anyway.
“Sounds good to me!” he conceded.
I’ve now got a son fifty bucks richer, two times more hyper likely due to a sugar pill and one happy sibling who will be tagging along with him to the Happiest Place on Earth.
This Jesus of mine clearly has a good sense of humor.
* Photo taken last week before the kids’ music show. That’s my Pip on the left. Miss L is on the right. Stink is, of course, front and center. It’s shocking he’d pick out clothes that would make him stand out so much, huh?
2 thoughts on “Consequences and T.S. – The Big Pay Off”
Not to diminish your Dr. or any other dedicated professional who works diligently to improve lives, but if any of those professionals would agree that it is possible that “Stink was brought up to believe that he, as a person… as a soul… is valid, despite a few “flaws” in the form of tremors and twitches?” and that “through the grace of God, (Stink) could rise above his own wonky circumstances and love his life…” he, Stink, would not fit neatly into a box of a diagnosis that could benefit from treatment. Their Kool-Aid is as yummy to them as yours is you and your kid. Again, I am not against treatment altogether. Each case is different. I just think you’re not wrong to think it’s not a “flaw” to love your life!
Hey, we’re going to go to Disneyland this week. You guys should play hooky and come with us.