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My Daughter Has Special Needs, Too!

As many of you readers know, I have a little girl I refer to as Pip. She’s a year behind Stink in school. She pretty much worships the ground her brother walks on. This includes not wanting to give up sharing a room with him, laughing until her eyes pop out of her sockets at him, and giving a speech at school about why “Stink is My Hero.”

None of her adoration comes from feeling sorry for his tics. Quite the contrary, she just finds him hysterical because, well, he is.

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I write this because I’ve had this huge shift lately in how I talk about my son. While yes, he does tic (and with that comes some special accommodations like diet and the whole ‘he has T.S.’ speeches for new play dates and school years) he is not really what I’d consider special needs. There’s not a darn thing wrong with his academic or social life.

You know who does have special needs more and more? My daughter.

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She is traversing those rocky waters of pre-tween years. Her math and science are starting to take a dip. Some of this could be said that I spend too much time with Stink, but truthfully, that’s not it. I am hyper vigilant about spending time with her, from our mommy daughter library days each Monday to our road trips and nightly reading. (We are half way through Anne of Green Gables. The little orphan kid is a kick in the gingham pants, for sure!)

The truth is that Pip is stumbling a bit because of me. I’m just not around as much as I used to be. I’m working full time. I am tired when I get home. I always figured my pragmatic Hermione Granger had it all together because, well, she mostly does! But these days, she needs some extra support, and all fingers point to me and my performance in the past 3 months. I have been there each day – picking her up after school at 2PM on the dot. But, after getting up at 4:30 for a 6am shift, I’m not there for her. And that needs to change.

The nail in the coffin came a few days back during one of my weekly gatherings.  With 12 kids running amok like feral beasts in my back yard, the conversation turned to male/female dynamics shifting at school. A friend turned to me and said, “Bekka really misses spending time with Stink. She thinks he’s awesome, despite the fact that some kids in school find him odd.”

* Side note: Last year that statement – the part about him being ‘odd’ – would have broken my heart. But this year, for whatever reason, I am 100% confidant in his “weirdness” as being what makes him brilliant and eccentric. Like my daughter, I find him outrageously hysterical. I am no longer going to put my fears on his tics. He is proving himself “innocent to self-confidence plummets’ until proven guilty.

“Belle,” I told my friend, “My kid is awesome despite some special needs.”

She slammed down her wine glass which, frankly, was kind of dramatic and awesome all at once. C “He does not have special needs!” she bellowed. “He has a medical condition! There is a difference.”

I was stunned. And you know what? She was right.

Then and there, it hit me like a ton of gluten free bagels from a toaster (which translates to the same as “bricks.”) It became as evident as white on rice that it’s time to put that special needs label to rest. I’m not against labels, but I don’t need them anymore to as a stamp of protection on my self-depricating “I know my kid has issues” defensive diploma.

In the blink of an eye, I got the upgrade I had been looking for but didn’t know I needed. My son has a medical condition. Not my fault! Let it go, mama! (Only took 5 years of blogging and a finished book to get there. I’m a slow learner.)

If you think about it, don’t we all have special needs? I do for sure. My throat is killing me. I haven’t seen a dear friend in over a month. My new dog is scared of other dogs and subsequently wants to eat them! And, yes, daughter has needs, too. Because of it, she’ll be getting some special attention today.

Today we will sit side by side in our local library. We will talk fractions and loft beds. We will discuss Junie B. Jones, Anne of Green Gables, and lament the fact that there has not been a new Clementine book in a YEAR!

And then we will go out for ice cream because my son with the special needs medical condition shouldn’t eat it right before acupuncture.

Do you have special needs? What are they? Mine is for connection, great food, a glass of red wine and a super book. What are your thoughts on labels vs. no labels?

PS: Here’s my latest column at Believe.com. If you’re a person of faith, or even if you’re not, I’d love for you to register there and leave a comment. Thank you!

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About Andrea Frazer

Find me at www.happilytickedoff.com! I'm a produced television, magazine, newspaper and national blog writer available for freelance writing in the areas of faith, parenting, lifestyle and healthcare. In addition to ghostwriting and content creation, I am proud to be publishing my first book. Called "Happily Ticked Off," it is a humorous mom-moir about raising a son with Tourette Syndrome. I can best be described as Erma Bombeck meets Nora Ephron. I live to connect with others through writing, authenticity and just a wee bit of sass.

3 responses »

  1. Motherhood is quite a journey, no matter what. You’re an especially strong role model and I admire how much you’ve accomplished. It was sweet of you to stop by my writing blog. Actually, I turn 60 in August. This is my last year of the “fab” fifties, so that column was more about the accepting the big 6-Oh ahead of time. I will go over to Believe and read your writings there this week. Take care.

    Reply
  2. Wow ! The name of your website says alot. I am a slow learner too. Oh sooo slow…
    Labels? yes, in a sense they are a necessary ( somewhat evil ). But mostly over rated, over used & all over us. We must all be something. Even a rebellious Jesus.Thank God, for both of you.

    Reply
  3. Deborah Dahl

    YES! I LOVE THIS! I frequently use the term special needs for my daughter. It’s not so much that I didn’t like it or think the label is bad, just never felt it was the right descriptive term. My daughter has a medical condition! errr well a couple of medical conditions…

    Reply

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