After a week of highs I’m hitting a bit of a low this week.
UCLA, for all its fabulous sounding accolades and support, is not going to be for us.
Turns out that yes, Stink qualifies for a certain study involving focusing issues. But we were led to believe we’d have a real diagnosis of some sort for his school files. This was a big plus for us, considering diagnosing a kid with anything can cost thousands of dollars. Also, Stink wasn’t eligible for an IEP based on his social and academic performance. He’s doing well. It would have been nice to have paperwork in place should we need to pull some strings later on in his academic career and not go through this crazy testing again.
While Dom qualifies for a certain diagnosis to make him eligible for the study, this diagnosis is not complete. Turns out it was just enough testing to qualify him for the study. Given that this study is being funded by the NIH (National Institute for Health) I’m left with a yukky taste in my mouth. My thoughts go something like this: “You mean I’m going to drive my son one day/week for 8 weeks to UCLA to give him drugs (or maybe a sugar pill, depending on the luck of the draw) to help a big university get $?”
Sure, it could help Stink focus a bit more.
It could also kill his joy.
I’ve got a kid who loves life, has more friends than I can count, is doing amazing in school and loves his tics.
I’m thinking I’d be on drugs to give him medication at this time.
More later. It’s time to lick my wounds and start again on this long road to accepting that my kid tics. MY KID TICS. MY KID TICS! This drug could eliminate a bit of his focus issues and almost all of his tics, but I’m not willing to eliminate Stink’s soul in the process.
And so, we move ahead again. One step at a time. Thanks for being there for me.