Consider this your 12-Step Tics and Other Special Needs Group where we will encourage each other to:
1. Accept the diagnoses we cannot change
2. Change the diagnoses we can
3. And have the wisdom to know the difference.
My biggest production yet has been my two children, Stink (14) and Pip (13).
Fear: When my son was diagnosed with Tourette syndrome in 2007, I was pretty ticked off. Thanks to the media and fear inducing internet articles, I was terrified he would curse, shriek, scream and curse obscenities in circle time.
Reality: Quite the opposite, he is highly creative, social and thriving.
Fantasy: His symptoms are gone and he’s currently a poster child for Gap!
Actuality: I keep his tics at a minimum through a gluten free/caesin free diet.
Nightmare: I used to live in a constant place of dread and panic.
I don’t worry about tics at all anymore. I began living in the present and focusing on the amazing person Stink is, despite a few tics.
Insanity: I’d spend hours of misery pouring over the internet for quick fix cures.
Reality: I accepted that TS doesn’t have a cure, but my bad attitude could be transformed – one day at a time.
Transformation: Like childbirth, there was ton of groaning, cursing and gnashing of teeth. (A little anti-anxiety medication to ease the pain didn’t hurt me, either.)
Results: In calming myself down and keeping my eyes focused on faith, not fear, I was able to nurture a child who is loving, kind, and funny as hell – T.S. or not.
Purpose of This Blog
I aim to write the blog that wasn’t there for me when my son was diagnosed five years ago.
I will pack this blog full of hope for the tired mom who just wants to know her kid is going to be okay. (He is!)
I will remind you daily that life is a journey. It’s your choice to play the best hand given the cards you were dealt.
I will remind you that while your child’s diagnosis isn’t what you might have chosen, it can end up being the greatest present you or child ever opened, because it forces us to face that fact that NOTHING IS PERFECT.
NO CHILD IS PERFECT.
I’d rather have my confident son, with a few quirks, then a “perfect” child who is an insecure twit.
Consider your child’s diagnosis your invite to getting a grip on the realities of life: The good, the bad, and the less than pleasant. But also the pure joy. Because no minor (or major) shaking, tics, twitches or jerks can detract from a pure exuberance that shines from the inside out.
You are not alone.
Joy is possible.
Welcome to Happily Ticked Off.
* Daily blogs can be found on the sidebar on the right, or click on the “Home” tab above.
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